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Essential Resources for Transplant Recipients, Caregivers, and Families
Empowering Your Transplant Journey with Knowledge and Support
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Explore a comprehensive collection of resources tailored for transplant recipients, candidates, caregivers, and families. From support groups and mentorship programs to medical directories and educational materials, our resource page provides the information and support you need at every stage of the transplant journey.
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Events
Stay informed about upcoming events focused on organ donation, transplantation, and post-transplant care. You can also access recordings of past events to learn from experts and hear personal stories from other transplant patients.
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Transplant Games of America
Location Varies
The Transplant Games of America have an incredible 33-year legacy, uniting a community deeply connected by the life-changing gift of organ, eye, and tissue donation. This event brings together recipients, living donors, donor families, patients awaiting transplants, and healthcare professionals from the transplant and donation fields. Caregivers, supporters, and fans join the six-day celebration, making it a joyful occasion that honors life and highlights the ongoing need for more organ donations.
Liver Walk Atlanta
Atlanta, GA
The Liver Life Walk is a key event hosted by the American Liver Foundation (ALF), offering a spirited and uplifting atmosphere. It provides participants with the chance to unite, raise awareness, and generate funds to support the liver health community. Proceeds from the Liver Life Walk benefit the 100 million Americans impacted by liver disease by funding resources, education, and support services, while also advancing advocacy efforts in Washington, D.C., and promoting liver disease research. Through this initiative, ALF is focused on creating a future free of liver disease.
Kidney Walk
Location Varies
The Kidney Walk is a signature fundraising event organized by the National Kidney Foundation, bringing together nearly 70 communities to raise funds, empower those affected by kidney disease, and increase awareness. With more than 80 cents of every dollar going towards research, patient services, education, and advocacy, the walk plays a crucial role in supporting the 37 million Americans living with chronic kidney disease. Participants, whether walking in parks, zoos, stadiums, or virtually, are united in the mission to promote early diagnosis, treatment, and support for kidney health, while advocating for life-saving change on Capitol Hill.
For more transplant-related events and details, visit the Georgia Transplant Foundation, LifeLink of Georgia, and Donate Life America websites.
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Support Groups
Connecting with others who share similar experiences can provide invaluable support and comfort. Whether you're a transplant recipient, a caregiver, or a family member, joining a support group can help you navigate your transplant journey with the support of a community that understands what you're going through.
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Georgia Transplant Foundation (monthly)
All organ support group meeting held every third Wednesday of the month at 7 pm.
Contact: Candice Stephens
Email: info@dayafterfoundation.com
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Piedmont Kidney Transplant Support Group (monthly)
Every 2nd Saturday at 11 am
Contact: Hannah Graves
Email: hannah.graves@piedmont.org
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Kidney Solutions Support Group (monthly)
Every Monday at 7 pm.
Contact: Mr. Bressler
Phone: 830-285-2140
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Liver Support Group (monthly)
Hosted by University of Florida Health Shands Hospital every 2nd and 4th Thursday from 10:00 am-11:00 am.
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Transplant Talk (monthly)
Meets every 4th Tuesday
Contact: Gary Simmons, Liver Recipient at 704-699-3046
Email: transplanttalksc@gmail.com
Note: Transplant Talk is a program led by patients who have experienced a transplant and wish to support others through education and community connection. This is a FREE program.
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Additional Support:
Caregiver Assistance:
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For more information on caregiver support, ask your insurance company
The Gift of Life Caregiver Lifeline Program:
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Offers free online support groups for transplant patients and caregivers.
Transplant Patient Support Group:
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Meets the 3rd Monday of every month from 4-5 pm EDT.
Caregiver Support Group
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Meets the 1st and 3rd Wednesday of every month from 4-5 pm EDT.
Access a comprehensive list of resources connected to transplantation and transplant centers specializing in organ transplantation. Each listing provides contact details and a summary of services offered, helping you find the right care provider for your needs.
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Resource Directory
General Transplant Resources
Access Essential Transplant Resources: Support Services, Education, and Assistance for Every Stage of the Journey.
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Care DX: Specialized transplant care services
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Help Hope Live: Fundraising for costs insurance doesn’t cover
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Georgia Gateway: State government web portal to access assistance programs: Georgia Gateway
Mentorship Programs
Connect with mentors who have firsthand experience with the transplant process, offering guidance, support, and encouragement.
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My Transplant Coach:
Provides mentorship opportunities for those going through the transplant process.
Connect with a Mentor
The Mentor Project, a program by the Georgia Transplant Foundation, offers crucial emotional support and guidance for transplant candidates and recipients, helping them navigate the challenges of their transplant journey and adjust to life post-transplant.
Transplant Centers
Explore Leading Transplant Centers: Comprehensive Care and Program Comparisons for Informed Decision-Making.
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Piedmont Transplant Institute, and others provide comprehensive care for transplant patients.
Compare transplant programs using the Scientific Registry of Transplant Recipients (SRTR) to find the best options for your needs: SRTR - Find and Compare Transplant Programs.
Living Donor Resources
Comprehensive Living Donor Information: Guidelines, Support, and Resources for Those Considering Living Donation
Seeking a Living Donor:
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The Donor App is a free site to help get the word out for the need for a living donor.
Proper Skin Care Tips for Transplant Patients
Transplant patients are at a greater risk of developing skin cancer due to anti-rejection medications, which weaken the immune system.
Prevention includes:
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Performing regular self-skin exams.
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Using broad-spectrum sunscreen SPF 15 or higher.
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Getting annual screenings with a dermatologist.
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Considering skin supplements like Healiocare Advanced Skin Supplement.
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For more details on skin care and other related information, consult your healthcare provider.
FAQ
We offer a variety of resources for transplant recipients and their families, including support groups, mentorship programs, and directories of healthcare services and pharmacies specializing in transplant care. You can also find educational materials, upcoming events, and recorded webinars to stay informed and supported throughout your transplant journey.
We have compiled a list of both online and in-person support groups tailored for transplant patients, caregivers, and families. To join a support group, visit our Support Groups section to find contact information and meeting schedules.
Mentors are individuals who have personal experience with the transplant process, either as recipients or caregivers. They provide guidance, share their experiences, and offer support to help you navigate your transplant journey. If you are interested in connecting with a mentor, visit our directory section where you'll find the Mentorship Programs section to learn more.
Attending transplant-related events allows you to gain valuable insights from experts, connect with others going through similar experiences, and stay informed about the latest advancements in transplantation. You can find information about upcoming events and how to register on our Events section on this page.
Yes, we provide resources specifically for living organ donors. Visit our Living Donation Resources section in the directory.
Post-transplant patients are at a higher risk for skin complications due to immunosuppressive medications. It is essential to practice good skincare, including using sunscreen, getting regular skin checks, and following your healthcare provider’s advice. For more detailed guidelines, visit our Skincare Tips section in the directory.
To stay updated on new resources, support options, and events, consider subscribing to our newsletter or regularly visiting our website.
If you need more information or have specific questions about the resources available, you can contact us directly through our Contact Us page. We are here to help guide you through your transplant journey.
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Important Disclaimer:
The resources provided on this page are for educational purposes only and should not replace professional medical advice. Always consult your healthcare provider for personalized guidance and decisions related to your health and transplant care.
Mental Health Resources
Holistic Mental Health Support for Transplant Patients: Affordable Counseling and Telehealth Options Tailored to Your Needs
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Open Path Collective:
Offers in-office and online psychotherapy sessions at affordable rates. -
Psychology Today: Find therapists by location, insurance, and specialty.
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Out of the Box Counseling:
Phone: (678) 379-9520
Multiple locations in Georgia, offering telehealth. -
The Anxiety and Stress Institute:
Phone: (770-953-0080)
Marietta, GA, offering telehealth.
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Jewish Family & Career Services of Atlanta, Inc.:
Phone: (770-677-9300)
Offers telehealth and low-cost psychotherapy to people of all faiths. Email: therapy@jfcsatl.org
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Heartwork Counseling Center:
Phone: (404-658-1222x20)
Atlanta, GA, offering telehealth.
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Additional centers include Metropolitan Counseling Services, Wholeheart Psychotherapy, Key Counseling Group, Great Oak Counseling, Southeastern Psychological Services, and more.
Medical Equipment
Essential Tools for Post-Transplant Recovery and Long-Term Care
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Friends of Disabled Adults and Children (FODAC):
Provides free medical equipment available for post-transplant support.
Pharmacies
Pharmacy specializing in transplant medications.
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Synergen Rx:
Contact: Walter Shutter, PharmD
Phone: 770-727-0443